Shaved my hair!

Shaved my hair!

Santa and Joshua

Santa and Joshua

Friday, September 28, 2007

Update from Michelle

Hey everyone, Michelle here. I am doing the update today as my hubby isn't feeling good enough to be on here. So, you're all stuck with me.
Thanks to everyone who comes here through out your day/week to check on us. Things haven't changed much. Charlie did have his injection last Thursday and has been having good and bad days with pain. If you don't remember the injection is a medicine that is suppose to keep his white blood cell count up. The downside is the pain in his bones. His pain has come back in his hips and lower back. The other thing is it doesn't mean his counts won't go down as we learned this week. Monday he had a blood check and was back down to 3.1 after being at 7.0 on Thursday, just 4 days prior. Hoping it will benefit him as time goes on. He will have another injection next week and Monday they will check his CBC.
He is having days where he sleeps 17 hours or more, or he doesn't sleep at all. He's hurting so bad. I don't know how to make him feel better, other than massage. If anyone has any suggestions with deep bone pain, please let us know. Speaking of that, thanks so much to those of you that have made suggestions and even sent us different stuff to help out. It means the world to us.
A few little side notes about the rest of our life. Thanks again to Rachelle and Rich for making it possible to have Rick, Mike and Chris all at the Argos game last Sunday. Charlie would have gave anything to be there with his brothers and take his place as the honorary captain. Thank you to all the Argos that helped make it such a great day.
Erica made a big part in a local production of the Headless Horseman. She is very excited and it was her first real audition. The show is November 12th and 13th.
Jessie is getting ready to take Hunters Safety next weekend so she can join my parents in November to try and get some venision for us.
School is going great for the girls. Both having a little trouble in 1 class each. French 2 has Jessie knocked on her bum. Wich her cousin Meagan lived closer, we know how great she is at that. Erica's troubles still History. She just hates it. But is realizing she has to do it.
Well, guess I have updated enough, please know that my wonderful husband will be on here and leave you all a note as soon as he feels up to it. God Bless each and every one of you!
Hugs & Blessings!
Love
Michelle, Charlie, Jessie & Erica xoxoxo

Tuesday, September 25, 2007

OUR GIRLS & I THANK YOU

Just a quick thanks again, I don't know if I can say it enough for all those who have prayed for Charlie/Chuck. For those who have went out of their way to do acts of kindness for him and us. It truly has brought happiness in a super sad time to our family. I know Chuck will be posting today, God willing he feels better today then yesterday. He slept another 15 hours yesterday in his chair, minus radiation and blood work. His blood work is border line low again. :( I don't know if they are going to give him another shot or what, but I am sure they are going to keep an eye on it often.
Thanks again for everything from Charlie's girls!!!
All our love, hugs & blessings,
Michelle, Jessie & Erica xoxoxox

Sunday, September 23, 2007

Yeah Argooooo's!

Woohoo, we are so happy that the Argo's won. It sounded like a good game. Unfortunately we did not hear the coin toss ceremony. I am sure it was exciting (for Rick, Mike and Chris anyways). Let this be the start of a winning streak all the way to the Grey Cup!
Talk to you all soon.
Love CMJE.

Thanks is never enough!!!!!!!!!!!

Chuck is fast asleep in his chair, he seems to sleep better in the recliner now then the bed. I wanted to take this opportunity to send our thanks to everyone again that stops by and reads our posts. It helps us to know so many people care and love us. We are still in awe at the kind gesture Rich and Rachelle are making on behalf of the Toronto Argonauts. We will be listening in on 590 that's for sure. (For any of you that want to listen to them announce the coin flip and talk about Charlie here in the states, call us and we can tell you how.) The game is at 4pm. Chris, Mike & Rick please have a safe trip and give our best to Rich, Rachelle and the whole team. We can't wait to watch this on tape. I want you to know that when Chuck wrote in his blog on Saturday this has lifted his spirits he truly meant it.
As for Charlie's condition last night and thru the middle of the night. He is miserable. Can't seem to stop the pain/lumps in his throat. We knew this could happen from the direct radiation to the esphogas, but didn't know how bad. He's in a lot of physical pain and is just not himself. I think the pain is from that dang shot. We have to keep the girls away from him, as of course they have developed colds and their shampoo just gags him. They aren't wearing any perfume or such now either. Anything they can do to help their daddy get better.
Well, again Thanks to all for everything you are doing for us. Your kindness will not be put by the wayside. (Hope that makes sense).
God Bless each of you and yours.
Hugs & Blessings!
Love,
Chuck, Michelle, Jessie & Erica Jokinen

Saturday, September 22, 2007

Its the weekend!

Well its Saturday! I have completed 16 days of Radiation, which means...9 days left for this round. And this week was my second series of Chemo, so I have two more series to go. I think it works out that this "round" of treatments will be completely over by Nov. 1st.
I will find out this week how soon after this round of treatments, before they will scan me to see how everything is looking. As bad as I have been feeling, I am sure it means the cancer is well on its way to being completely gone.
This week, my throat has been very sore from the radiation, plus my sense of smell has gone into overdrive. Any perfumes, deodorants, air fresheners have been driving me nuts. Apparently it is very common for strong odors to drive chemo patients crazy. I hope that passes.
Well, tomorrow is going to be a fun day with the Toronto Argonauts. It is so crazy that they have named me honorary captain for tomorrow's game. It truly has lifted my spirits! I wish I could be there.
Thats it for now. Hope everyone is having a great weekend. Talk to you all soon.
CMJE

Thursday, September 20, 2007

It's been a rough day

Charlie is having a really bad day today. He had radiation this morning after he had his shot that is suppose to try and keep his WBC count up. This shot is similiar to the shot he received last week, however is meant to last many more days and be a lot more constant pain. :(
He has been having lots of trouble with his reflux/burned esphogas (sorry about that spelling there.) The Dr gave him some more tablets to see if it could be a form a yeast infection and he is pretty much on liquid only diet. His own doing. I feel so bad for him. His chest and back are getting radiation burns now too.
I had one of my molars removed today too. Nothing compared to what my baby is going thru. Please keep him in your thoughts and prayers and we love to read your notes you leave behind. Enjoy the weather winter has to be right around the corner.
We love you all.
Oh, we have joined facebook.com, if any of you belong to that, let us know and Charlie can help us set up with you. I don't know anything about it. lol Typical.
Love & Blessings
CMJE

Monday, September 17, 2007

Hey everyone!

Just a quick note before I head to bed. Yep, its 7:30 pm, and it's bed time. Anyways, today was back to Chemotherapy which was a long session. I think we were there for almost 3 hours. They added the anti nausea drug, which has helped, and I will receive it tomorrow and Wed., and then on Thursday I still go in, but only for a shot of Neulastin, which is the longer lasting version of Neupogin, which boosts my white blood cell count. They actually dropped quite a bit today, but was still in the range to continue chemo and radiation.
I also went to Radiation therapy which I think is what drains my energy. I am sure it will be a long week.
I received an email today from my Aunt Janet in Denmark who is also battling Cancer. She restarted Chemo this week. I wanted to send our prayers, and hope that everyone visiting my blog will also stop and send their best off to her. I know you will get through all of this Janet. We love you, and you too Marty!
And also best wishes to best bud Jon and wife Claire who are expecting and are due within the next week or so. Good luck and God Bless.
That's all for now, I really am pooped. Michelle and the girls all say hello and send their love.
Talk to you all soon.
Love CMJE

Sunday, September 16, 2007

Good Morning everyone



Good Morning everyone. Just checking in. I woke up feeling pretty crappy, but, I have my heat pad on, and my neck wrap (heated) on, and I am finally feeling a bit better. We just finished watching the movie Memphis Belle, which was pretty good. Now we are getting ready for the Nascar race. Just checked out the Argo game from yesterday, and see that they didn't do too well. Better luck next weekend against Winnipeg. Someday I will get a Canadian Satellite dish so I can watch some Canadian programming here in Michigan. I don't even think we were able to watch the Grey Cup last year. Anyways, my renewed enthusiasm of the Argo's is thanks to Mr. Rich Stubler, who I am thrilled to have had visit our blog, and has also sent me an Argo's cap and polo shirt. Thanks Rich, I am sure my brothers are jealous!!

Tomorrow I restart my chemotherapy. So I hope I am feeling better tomorrow. It sucks not feeling well, and going into town, knowing that I will probably feel like crap after chemo. Our Oncologist said I am doing well, and that the treatments I am going through is a tough treatment. Sometimes I feel like I shouldn't be feeling as bad as I do, so it was good to hear that what I am feeling is normal.

I don't think we have mentioned this yet, but I have started to lose some hair this week. It just kind of falls out as I run my hand across my scalp. Kind of frustrating, but I think I will just cut my hair short and not worry about it. It will come back.

That's it for now. Thanks again everyone for all your thoughts and prayers. It really does help and makes us all feel better.

Talk to you all soon.

Love Charlie, Michelle, Jessica and Erica.

Friday, September 14, 2007

Dr.s appt today

Hi everyone. Michelle here. Charlie is fast asleep in the recliner. He's not feeling too great today, he is extremely tired. I just wanted to let everyone know how his appt went today. It went pretty good, or as good as can be expected. His blood pressure is still amazing. I don't know if we told you, but about a month ago he was able to come off his blood pressure meds. He had been on them for a couple years. They thought it may have been caused by the tumor, but since his surgery, his pressure has been outstanding.
Anyway, the Dr decided she was going to have him receive the medicine they gave him this week thru out chemo to try and counter act his blood levels from dropping so low again. The bad side about this is the pain will be constant instead of just the few days he experienced. Which don't get me wrong, the few days is terrible but now it will be even worse. We see the Dr again on Oct 8th.
Thanks for stopping by and reading our posts. It really makes us feel good to know you are all there praying for us. Please leave a hello when you can.
Hugs & Blessings
CMJE

Thursday, September 13, 2007

White blood cell counts are up.

Just wanted to let you know that my WBC was back up to 7.0 today, which is pretty much right in the middle of where they are suppose to be. So I had my radiation treatment today and should be able to continue my chemo next Monday.

Its a pretty nice day today here, warm, sunny, but pretty windy.

My back is still pretty sore, and my hips seem very stiff. More side effects from the Neupogen shots I got. Hopefully that will go away soon. I may need more shots in 2 -3 weeks, as the nurses said the WBC are normally at their low 2 weeks after chemo. And since I still have 3 more weeks of radiation, its more than likely that I will go through another low period.

Thats it for now. Hope everyone's week is going well. Talk to you all soon.
Love CMJE

Tuesday, September 11, 2007

New Poll!

Last weeks poll is over. The winner of favorite type television show was Dramatic. Yeahh.
This weeks poll is, What's your favorite color?
So, don't forget to place your votes!
Talk to you soon.
Love CMJE.

Hey there, it's me!

Well, just a quick note to say hi to everyone. Sorry it's been so long since I have been on. I must say thanks to Michelle for keeping everyone up to date, and for everyone who has been on here to read our posts. And especially those who have left us a message, its always nice to see when new messages have been left.

I got my shot this morning of, Neupogen (Filgrastim), to help boost my white blood cell count. I go back in tomorrow morning to get another and then back in on Thursday to have my blood count checked. It should be back up to where it is suppose to be and then I can continue wit my radiation treatment.
I do have a little lower back pain, which they said was a side effect of the shot,so I have a heat pad on, but it really isn't too bad. I may make some banana bread in a bit, we have some bananas we had thrown in the freezer a while ago.

Happy Birthday to Donna today, unfortunately on Sept. 11th, I always remember its Donna's birthday as we watch clips of 9/11 from 6 years ago. But we do think of you Donna!
Also, Rosh Hashana, Happy New Year!
Good Luck to you Janet with your chemo. We are thinking and praying for you as well. Glad your scans looked good.

Anyways, that's it for now. Going to rest my back before I go do some baking.
Hope everyone is having a good week.
...yikes we are now getting hailed on, and very windy!

Talk to you all soon.
Love Charlie, Michelle, Jessica and Erica.

Monday, September 10, 2007

Hey everyone..another update from Michelle

Hello. I really had hoped that Charlie would have been on here to update you himself on the issues we had today but he has slept all day. He really needs his rest so you are stuck hearing from me again.
Every Monday he has to go have a finger poke so the Dr. can check his white and red blood cell count and his platlet count (determines how fast his blood clots). Then we were going to be on our way to radiation. However, his wbc were way too low. (normal range is 4.6 - 10.0) His was 1.25. The radiation and chemo destroy healthy cells as well as the cancer cells. From what the lab lady told us it means the bone marrow is not helping his body make enough wbc. The wbc count is so important, it is what he needs to fight any infection that may try to come his way. He has to take his temp 2x a day right now, call the Dr if he has any signs of a fever 100.4 or greater. Tuesday morning he is going in to have an injection that is suppose to help his body produce more wbc/bone marrow. They told us the injection is going to cause bad pain in his bones for a few days. He cannot have radiation again untill his body can make more wbc. We get it re-checked on Thursday.
I hope what I have written makes some sense. Please feel free to leave a note if you have more questions or just want to say hi. It means the world to us.
God Bless you and yours...
All our love
Charlie/Chuck,Michelle,Jessie & Erica

Friday, September 7, 2007

End of the week

Well, it's Michelle again. Charlie is sleeping as I type this. He has had another day of being very tired and no energy. Yesterday (Thursday) was awesome. He and I couldn't believe how much better he seemed. Wednesday was Hell. Anyway, we finished the week of radiation. He has one more week off until chemo starts back up on the 17th. Anyway, I won't make this long, just again ask you to remember us in your prayers and thoughts daily. I am really hoping that Charlie has time to get on here this weekend.

Hugs, Blessings & Love
Charlie, Michelle, Jessie & Erica xoxxo

Wednesday, September 5, 2007

Michelle here again

Well, it's me again. I wanted to try and keep everyone that comes to our blog up to date. Not much to report. Charlie is still feeling extremely tired, has developed a cold and hurting all over. He seems not to be able to get comfy today.
We are on day number 2 this week of radiation. He had his finger poked yesterday and found that his WBC count was dropping a bit. They weren't too worried but want to keep an eye on things. They check it every week. It amazed me what they can check in 5 minutes just with a finger poke.
He is so tired and doesn't seem to be able to get enough sleep, even after sleeping nearly 17 hours on Saturday total. After radiation tomorrow, at 1pm, we see the radiation onocologist. He will just check on how things are going and answer any and hopefully all questions we have.
Please know that Charlie will be on here to leave you all a post as soon as he feels up to it. I'm doing it now so we don't leave people hanging.
Hope you are all doing good and ready for fall.
Hugs & Blessings,
Michelle, Charlie, Jessie & Erica

P.S. Hope all the kids started back to school with no problems. Erica and Jessie seem to be doing okay already getting settled in to the swing of things.

Saturday, September 1, 2007

A note from Michelle

Hi everyone, thanks for stopping by. I just wanted to send an update as Charlie hasn't been up to it the last few days. He is just so tired. This morning was really good, he didn't have a headache or the jaw pain he has been having. We think that is just from him now clenching his teeth. He finished his first week of radiation on Friday and now has 3 days off because of the holiday. I can't believe how fast the radiation is. He is only in there for 7 mins, and the guys are so nice. He is so strong and doing the best he can. He has developed a lump in his throat which he was told could happen, he says its just an annoying feeling. That's from radiation.
Well, again thanks for stopping by and checking on him. We are going to get thru this!!!!!!!!!!
Love,
Michelle